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Resources for PWS in Canada

National Canadian Organization:

  • Foundation for Prader Willi Research Canada:


Provincial Organizations:


  • Prader Willi Syndrome Association of Alberta:




Support for Staff:

Prader Willi Syndrome Network:


Training for Staff:

Online Resources and Support

There are also many online support groups that have been created by parents, for parents on Facebook. Please search Facebook for "Prader Willi" or contact our Executive Director for directions on how to access these useful groups.

Resources for PWS in Ontario

Ontario Prader-Willi Syndrome Association:
















International Resources for PWS



  • International Prader-Willi Syndrome Organisation:


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