This entry has been written by PWS parent and volunteer OPWSA Co-Chair, Holly Sine.

A family is typically related based on our DNA, on our chromosomal sameness, or created by choice. We look at each other and study similar features, similar mannerisms and behaviours ass...

My name is Ian Solnick and I had the opportunity to take part in an OPWSA Family Gathering in Toronto in February. By day I work with industry to create awareness around underrepresented areas in health so I was eager to get involved when my friend, Alisha Jaffer, aske...

My name is Rob Pividor. Many of you may know me from my many years involved with OPWSA coordinating the Youth Program at the OPWSA annual conferences and I now have the honour and privilege to be Co-Chair of the OPWSA Board of Directors with Holly Sine.

As many of you m...

Our individuals with PWS are so fortunate to have found this amazing camp!

Our campers are in their happy place from the moment they step out of their vehicles until the week ends and they head back home.

Some of our folks are a little apprehensive to go to a new place a...

On a snowy Sunday in February 2018, a group of the sweetest children came together to partake in some games, card-making and crafts, while their parents convened for a support group. They were an absolute joy to spend time with and made you feel like a kid again. This...

This entry has been written by PWS dad, and professional storyteller, Dan Yashinsky.

“Jacob has become a fine photographer over the last couple of years, and one of his photos captures a feeling that all of us probably have sometimes.  It's a pair of boots - worn out bu...

July 23, 2015

The weekend of May 30th proved to be exciting and interesting at the Foundation for Prader-Willi Research Canada Conference in Calgary, Alberta. Parents of PWS children, PWS adults, doctors, researchers and students alike gathered to appropriately engage in the theme o...

May 21, 2015

More protein, no sugar, low carb and lots of healthy fats? This type of diet has become a way of life, some say survival, for kids with Prader Willi Syndrome. The times are changing when it comes to what more and more parents are feeding their kids. Many parents are re...

February 5, 2015

The Ontario Prader Willi Association is currently recruiting for a one-year contract position (maternity leave replacement) of Family Support Coordinator. We are seeking a dynamic individual with proficient business skills, strong interpersonal skills, superior organiz...

January 28, 2015

The Ontario Prader Willi Syndrome Association is delighted to announce that Shadow Lake Center will again be the site for the 8th annual amazing Prader-Willi Camp from May 24-29, 2015! Once again, the amazing Shadow Lake staff have offered to run the BEST CAMP IN THE H...

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