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PWS Awareness Month

May is Prader-Willi Syndrome (PWS) Awareness Month, and every May OPWSA runs a PWS Awareness campaign on our Facebook Page and Instagram

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Did You Know? - Facts About PWS

Each day we share a "Did You Know" fact about PWS. We encourage our members to share these facts with their networks and communities to help spread PWS Awareness and educate other people about PWS issues and impacts.

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These posts can be used year-round as needed. We often hear from families and caregivers that extended family or friends don't truly understand PWS, so the "Did You Know" facts can help to paint a clearer picture of life with PWS.

PWS Everyday Challenge

Throughout the month, we also run the PWS Everyday Challenge which encourages individuals with PWS and their supporters to get involved in a variety of daily activities such as walking 2km, completing puzzles, other physical and mindfulness activities, as well as arts and crafts. Participants follow along with our PWS Everyday Challenge using the calendar of activities. We encourage those participating in the challenge to share their journey with us.

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​Stories From Our Community

During May, we share stories of members in our community. Check out the stories in our Blog.

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Follow along on our Facebook and Instagram pages and share your own journey. #PWSEveryday

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PWS Everyday Fundraising Campaign

Throughout May, PWS Awareness Month, the Ontario Prader-Willi Syndrome Association (OPWSA) is running the PWS Everyday Fundraising Campaign to raise funds for two key OPWSA initiatives: Family Support and PWS Week at Shadow Lake. Learn more about the campaign.

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If you are interested in helping to raise funds for OPWSA, please feel free to share the donation page with your networks. We have created a sample email blast that you can you and adjust as you see fit before, you send it to your family and friends. 

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The success of our fundraising efforts is dependent on the invaluable support of our community! 

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Telephone : ​1-416-481-8657

Toll-free : 1-800-563-1123

 

PO Box 73514

Toronto, Ontario

M6C 4A7

 

Email: ontariopws@gmail.com

This OPWSA website is intended to provide information only - not to diagnose or advocate particular treatment options. The diagnosis and treatment of Prader-Willi Syndrome should be made through a qualified medical professional. Thus, it is strongly urged that patients do not change treatment without first consulting their doctor.

The Ontario Prader-Willi Syndrome Association is a registered non-profit charity organization, established in 1982. CHARITABLE #: 11906 8203 RR0001

© 2024 Created by OPWSA

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