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PWS Awareness Month


Throughout May, PWS Awareness Month, OPWSA ran our PWS Awareness campaign on our Facebook Page and Instagram


Each day we shared a "Did You Know" fact about PWS. While we know that the facts we shared are well known to the members of our community, we shared these facts so that you can in turn share them amongst your own networks and communities to help spread PWS Awareness, and educate others on the challenges that individuals with PWS face.

These posts have been created for PWS Awareness Month, however, we hope that you can utilize them year round as needed. We often hear from families and caregivers that extended family or friends don't truly understand PWS, so these small pieces of information may help paint a clearer picture of what living with PWS is like.


We also ran the PWS Everyday Challenge which encouraged individuals with PWS and their supporters to get involved in a variety of daily activities such as walking 2km, completing puzzles, other physical and mindfulness activities, as well as arts and crafts. Participants were encouraged to follow along with our PWS Everyday Challenge with the calendar of activities. We encouraged those participating in the challenge to share their journey on our social media.


Throughout May, PWS Awareness Month, the Ontario Prader-Willi Syndrome Association (OPWSA) is running the PWS Everyday Fundraising Campaign to raise funds for two key OPWSA initiatives: Family Support and PWS Week at Shadow Lake. Learn more about the campaign.

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If you are interested in helping raise funds for OPWSA, please feel free to share the donation page with your networks. We have created a sample email blast that you can you and adjust as you see fit before, you send it to your family and friends. 

The success of our fundraising efforts is dependent on the invaluable support of our community! To donate, visit:

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