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PWS Awareness Month


Throughout May, PWS Awareness Month, OPWSA ran our PWS Awareness campaign on our Facebook Page and Instagram


Each day we will shared a "Did You Know" fact about PWS. While we know that the facts we shared are well known to the members of our community, we shared these facts so that you could in turn share them amongst your own networks and communities to help spread PWS Awareness, and educate others on the challenges that individuals with PWS face.

While these posts had been created for PWS Awareness Month, we hope that you can utilize them year round as needed. We often hear from families and caregivers that extended family or friends don't truly understand PWS, so these small pieces of information may help paint a clearer picture of what living with PWS is like.


We also ran the PWS Everyday Challenge which encouraged individuals with PWS and their supporters to get involved in a variety of daily activities such as walking 2km, completing puzzles, other physical and mindfulness activities, as well as arts and crafts. Participants could follow along with our PWS Everyday Challenge with the calendar of activities. We encouraged those participating in the challenge to share their journey with us. Our PWS Everyday Challenge culminated with a virtual dance party on Friday, May 26th, PWS Awareness Day, at 4:00pm EDT


Throughout the month, we shared a story of members in our community sharing their experiences with PWS. Check out the story on our Blog.

Follow along on our Facebook and Instagram pages and share your own journey. #PWSEveryday

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