PWS Awareness Month
May is Prader-Willi Syndrome (PWS) Awareness Month, and every May OPWSA runs a PWS Awareness campaign on our Facebook Page and Instagram.
Did You Know? - Facts About PWS
Each day we share a "Did You Know" fact about PWS. We encourage our members to share these facts with their networks and communities to help spread PWS Awareness and educate other people about PWS issues and impacts.
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These posts can be used year-round as needed. We often hear from families and caregivers that extended family or friends don't truly understand PWS, so the "Did You Know" facts can help to paint a clearer picture of life with PWS.
PWS Everyday Challenge
Throughout the month, we also run the PWS Everyday Challenge which encourages individuals with PWS and their supporters to get involved in a variety of daily activities such as walking 2km, completing puzzles, other physical and mindfulness activities, as well as arts and crafts. Participants follow along with our PWS Everyday Challenge using the calendar of activities. We encourage those participating in the challenge to share their journey with us.
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​Stories From Our Community
During May, we share stories of members in our community. Check out the stories in our Blog.
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Follow along on our Facebook and Instagram pages and share your own journey. #PWSEveryday
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PWS Everyday Fundraising Campaign
Throughout May, PWS Awareness Month, the Ontario Prader-Willi Syndrome Association (OPWSA) is running the PWS Everyday Fundraising Campaign to raise funds for two key OPWSA initiatives: Family Support and PWS Week at Shadow Lake. Learn more about the campaign.
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If you are interested in helping to raise funds for OPWSA, please feel free to share the donation page with your networks. We have created a sample email blast that you can you and adjust as you see fit before, you send it to your family and friends.
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The success of our fundraising efforts is dependent on the invaluable support of our community!
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