Family Gatherings

Due to the growing concern with COVID-19, OPWSA has decided to cancel our Toronto Family Gathering.

Thank you to all of the families who were able to join us at our London and Burlington Family Gatherings. It was so great connecting with all of you.


Click here for more information about the events.

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Thank you to everyone who joined us on Saturday, May 22nd for our Wines Among the Virtual Vines fundraising event.


It was a memorable evening with a wine tasting of two of Queenston Mile's wines and a drag show. The wine tasting was led by Queenston Mile Winemaker Rob Power, and featured the Queens of Queenston Mile Vineyard Katinka Kuture and Carlotta Carlisle, as well as a cooking demonstration with Chef Dana Cohen, the Scallop Queen, from Seasons 10 and 17 of Hell’s Kitchen on FOX.

Click here for more information about our Wines Among the Vines events.

OPWSA Wines Among the Virtual Vines Fundraising Event

On August 11th, 2019, families and friends came together for OPWSA's Family Fun Day with the Jays. It was a close game, but unfortunately the Jays lost 1-0 to the Yankees. While we couldn't pull out the win, we had beautiful weather, good seats, and we were surrounded by great people! 

Click here for more information about the event.

OPWSA Family Fun Day with the Jays


PWS Awareness Month

Throughout May, PWS Awareness Month, OPWSA ran our PWS Awareness campaign on our Facebook Page and Instagram.

Click here for more information about OPWSA's PWS Awareness Month Campaign.

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1K A Day Challenge for PWS Champions

Thanks to everyone who took part in OPWSA's August 1K A Day Challenge for PWS Champions!

Throughout the month of August, individuals with PWS and their families and friends were encouraged to go outside and enjoy a walk or a hike for at least 1 km every day or participate in 30 minutes of activity, like swimming or biking.

Click here for more information about OPWSA's 1K A Day Challenge for PWS Champions.

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OPWSA is hosting a FREE virtual conference from Tuesday, November 9th to Friday, November 12th. The conference will feature presentations on a wide range of topics including behaviour, school support, new diagnosis, and an update on residential options update.

Click here for more information about the event.

2021 Virtual Conference

New Diagnosis and Toddler Gathering

Join us on Wednesday, March 24th from 7:30pm-9:00pm for an evening of medical and financial information, resource sharing and tips and the opportunity to meet other families with PWS. OPWSA is hosting a New Diagnosis and Toddler online event to support parents, grandparents or any family members caring for children diagnosed with PWS ages 0-3 years old.

Click here to learn more about the New Diagnosis and Toddler Gathering.

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Thank you to everyone who joined us on Friday, May 28th at 4pm for a FREE virtual dance party in celebration of PWS Awareness Day!

Michelle Hillier from Experience Groove hosted a 30 minute Virtual Dance Party/Wellness-Focused Movement Experience for individuals with PWS of all ages. Using movement and positive messaging for over two decades for 1 million+ people of all ages and abilities, Michelle, recent TEDx presenter, provides inspiring, embodied and innovative ways for people to connect and recharge while building CONFIDENCE, nurturing CREATIVITY and making CONNECTIONS. When you are in Michelle's presence and move with her, "You Can't Get It Wrong!"

It was such a fun time!

PWS Everyday Challenge Virtual Dance Party


OPWSA Events