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PWS Everyday Fundraising Campaign

May is Prader-Willi Syndrome (PWS) Awareness Month, and throughout the month, the Ontario Prader-Willi Syndrome Association (OPWSA) is running our annual Awareness Month campaign (see below), as well as the PWS Everyday Fundraising Campaign with a goal of raising $10,000 in support of two key OPWSA initiatives: Family Support and PWS Week at Shadow Lake.

To continue to offer valuable services, programs and resources to individuals with PWS, their families and the professionals who support them, we need your help! YOU can make a long-lasting impact on our community by donating now.

OPWSA serves families and caregivers throughout their PWS journey, including diagnosis, early intervention, school, transitions to adulthood, residential options, and aging. 

Over the past few years, OPWSA has built some new programs and services to meet the needs of our community. We have conducted a number of PWS trainings for agencies and schools that support individuals with PWS. We have developed the First Trike Program that loans adaptive trikes and equipment to young children with PWS. We have also built a family support network for families of adult children with PWS looking for residential options. We have started an Animal Care Program to connect individuals with PWS with volunteer opportunities at local animal shelters.

OPWSA is always looking for new ways to support our PWS community, and this year we will be rolling out a new virtual social gathering program for individuals with PWS.

If you are interested in helping raise funds for OPWSA, please feel free to share the donation page with your networks. We have created a sample email blast that you can you and adjust as you see fit before, you send it to your family and friends. 

The success of our fundraising efforts is dependent on the invaluable support of our community! To donate, visit:


"During our most difficult times, the OPWSA has been our olive branch of support. Without this amazing organization, its resources, the tools it has given us, the information, and the respite with camp for our PWs, our lives would not be the same." 

Mother, Collingwood


"I am a mother of a son who has Prader-Willi Syndrome. The challenges we have had to face throughout his life right from a toddler to elementary school to high school and adult life, the Ontario Prader-Willi Syndrome Association has always been a phone call away. I am so deeply grateful to have the Association with all the advice, support, research, resources, passion, professionalism, and my crying phone calls, because I had nowhere to turn. Throughout the 28 years I could have not done it without their help.”

Mother, Oakville



Jennifer Coens

Natalie Fingerhut

Allison Foster

Larry Gee

Gershon Rubin Family - Elah, Iris, and Michael

Hana Holubec

Heather Kestenbaum

Cathy Mallove

Michelle McClory

Richard McKay

Ellen Vanstone

Terry Yanowski

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