New Diagnosis
When a child is diagnosed with Prader-Willi Syndrome (PWS), it can be a very frightening and uneasy time for the parents, siblings, and extended family. PWS is a rare genetic disorder affecting just one out of approximately 15,000-30,000 births. It can be tough for families to find information without feeling overwhelmed.
Babies with PWS need what all babies need: cuddles, nourishment, stories, songs, and love. They will grow, learn, reach childhood milestones at their own individual rate, and express their own unique personalities.
With proper supports in place, individuals with PWS can live long and meaningful lives.
You Are Not Alone: Connect with OPWSA and Other PWS Families Now!
As a member of OPWSA, we can connect you to resources and support for your baby and family. You are not alone in this journey. Let us introduce you to the PWS community in Ontario, across Canada, and around the world. Become a member of OPWSA to gain access to the latest information and upcoming events. If you are interested in connecting with other PWS families, please feel free to reach out at any time!
Jennifer Coens
Executive Director
416-481-8657
1-800-563-1123
Other Trusted Resources
If you’re interested in learning more about Prader-Willi, new diagnoses, and family support, consider visiting other trusted PWS organizations and resources.